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Remarks at the Spirit of Hospice Awards Dinner
New Jersey Hospice and Palliative Care Organization (NJHPCO)
Conference
Atlantic City, NJ
Thursday, October 1,1998
Keynote Address “The Arts: Are They Real Medicine?”
These
remarks are dedicated to my late father-in-law
Murray
Dienstman
Thank you. I want to especially thank Allan Ginsberg of Heritage
Hospice for suggesting me as your dinner speaker. Congratulations
to all of the awardees. It is very important for you to celebrate
your successes and I am honored to be part of this evening’s
proceedings - the first awards dinner of the New Jersey Hospice
and Palliative Care Organization or NJHPCO. I usually say that
I am honored to speak at these types of events but, in this special
group, I feel moved to say that I am blessed to be among you as
you strive to address, in my opinion, the most important aspect
of the practice of modern medicine - helping our fellow human
beings, that is our patients, cope with pain, suffering and ultimately
dying and death. I’d like now to engage in a special exercise,
which I call a collective pinch of ourselves. No, we are not dreaming.
I believe that all of medicine is undergoing a very painful but
necessary transition one characterized by three fundamental trends.
The
first is a transition from reductionism to holism, the second
is a transition from medical paternalism to empowerment or consumerism,
the third is from a fear of death to a love of life, which I call
the paradigm of medical optimism. The excesses of a truly miraculous
era of modern biotechnology based medicine are beginning to bite
back, backfire if you will. A new neuroscience driven, bio-psycho-social
spiritual model of health care is emerging right now! After two
hundred years of western medicine denying what I call “the
reality of the anatomical existence of the neck, a mind-body medical
model is finally getting it’s long overdo recognition.”
I also refer to this as the democratization of psychiatry. The
wisdom and humanism of caring is replacing the vanity of curing.
Certainly, we can and should try to cure specific diseases but
all mature individuals know that there is no ultimate “cure”
for the human condition. The closest we have to that is love and
beauty. I would contend that none of our patients ever become
fully cured. I would say that only pickles and ham get cured.
What we can do successfully is help people in trouble become healed
and become whole.
The
Hospice and Palliative Care Movement have been pioneers and remain
on the forefront of this “healing revolution” - what
I call “the late, great twenty-first century heal-in.”
I believe, that you are practicing the best medicine by helping
patients with their own self discovery process, that is assisting
them with becoming who they really are, helping unfold their essence
or what social scientist, Jean Houston, says is each individual’s
“Entelechy” so that they can recognize their own unique
identity, gifts and beauty which then allows them to experience
the unconditional love and beauty of the universe.
What
does all this have to do with the arts? In September of 1993,
I had the privilege to spend a full day in New York City with
prominent journalist, Bill Moyers. He had just won an Emmy for
his series titled, “Healing in the Mind,” which helped
popularized Alternative Medicine and, I believe, played a major
role in its growth and acceptance. He and his production team
were entertaining the idea of doing another series entitled, “Healing
and the Ads.” Toward the end of the day, he made the following
statement and posed the following question to me. He said, “We
all know, Dr. Lippin, that the arts generally have a salutary
affect on us in that they improve the quality of our lives but
are the arts real medicine? Can they stand shoulder to shoulder
with the three big guns of modern western medicine namely pharmacology,
surgery and radiation?”
Well,
let me tell you a little bit about what I told him that day beginning
with the fact that the creative arts therapies have been with
us since World War II. Now we have over 5,000 music therapists,
over 2,200 art therapists, over 1,000 dance therapists and several
hundred poetry and drama therapists. That furthermore there are
over 140 undergraduate and graduate degree programs in creative
arts therapy and at least 10 professional associations now exist.
While these therapies had been applied successfully in mostly
psychiatric settings, more recently, again because of modern neuroscience,
we have the technical capacity to validate their effect in other
medical specialities - most notably Physiatry, Pediatrics, Geriatrics,
Oncology and, of course, Palliative Medicine. Some of us like
to include the arts therapies in what we like to call “Arts
Medicine,” a phrase I coined in 1985. In 1991, hearings
were held by U.S. Senate’s Select Committee on Aging on
the power of music on health entitled, Forever Young. Among those
testifying was the renowned neurologist, Oliver Sacks, who is
an ongoing advocate for the use of music especially in Alzheimer’s
Disease. You may recall seeing the movie, Awakenings, with Robin
Williams who portrayed the character of Oliver Sacks, as it relates
to the use of music in post influenza encepalopathy patients.
The following year in 1992, the same Senate Select Committee held
another hearing on the healing power of dance and the visual arts.
This lead the Health Care Financing Organization or HCFA to include
music therapy as a reimbursable service under certain conditions
within Medicare partial hospitalization policies. Let me also
note that two of the inaugural grants by the Office of Alternative
Medicine (OAM) of the prestigious National Institute of Health
(NIH) were awarded for creative arts therapy research projects.
Both, incidentally, were in my home state of Pennsylvania and
included the impact of music on brain damaged individuals and
the impact on dance on cystic fibrosis. In 1993, a group of scientists
at the University of California Irvine made a breakthrough in
the music area when they published an article in the prestigious
British Journal, Nature, which concluded that spatial and abstract
reasoning test scores could be improved significantly after specifically
listening to the music of Mozart. This phenomena was validated
in pre-schoolers and toddlers and trademarked as the “Mozart
Effect,” which has literally spawned an industry which has
all the earmarks and the marketing fanfare of the introduction
of a new drug by the pharmaceutical industry. Professor Jane Stanley
from Florida State University in Tallahassee has completed a meta-analysis
of 92 empiric research studies on music and medicine, most of
which were conducted during the last decade. She has published
a book entitled, Research and Music Therapy, A Tradition Of Excellence,
Outstanding Reprints from the Journal of Music Therapy, 1964 to
1996 (Allen Press, 1994). Dr. Ralph Spintge of Ludensheid, Germany,
has studied over eighty thousand patients since founding the International
Society for Music and Medicine (ISMIM) and has become an expert
in the anxiolytic and analgesic effect of music on surgical patients.
Many of you probably know that in 1993, Dr. David Eisenberg from
Harvard published a landmark study in the New England Journal
of Medicine (NEJM) indicating the number of individuals in this
country who utilize alternative medicine. This and the Moyers
series ignited a huge popular ground swell as it relates to the
legitimacy of alternative medicine interventions in this country.
I believe, we in Arts Medicine will have our “Eisenberg
article”, which will put in motion forces for much greater
acceptance of these interventions. This trend is beginning to
manifest itself already. JAMA, the Journal of the American Medical
Association, recently published an article on the reduction of
autonomic activity and stress among surgeons while listening to
music in a surgical theatre (note they call it a theatre) as well
as a laboratory setting. Also, I am sure all of you are aware
of the issue of polypharmacy and you have been reading about frightening
occurrences of adverse drug effects in hospitalized patients.
In April of this year, JAMA cited over one hundred thousand deaths
due to this phenomena and 2.2 million serious side effects. Some
experts say that the amount, types and mixtures of medicines consumed
by patients above the age of 65 constitutes “America’s
Second Drug Epidemic” and it is obviously a very important
issue in your particular patient population. Will the Arts replace
drugs? Of course not, but one of the distinct advantages of applying
the Arts in Medicine is possible reduction in doses and numbers
of medicine. As one expert said when you compare morphine to music,
morphine win out will every time but if you can back off on the
numbers of drugs, you have made real progress. In particular,
in your fields of Thanatology and Palliative Medicine, you may
know of Therese Schroeder-Sheker, who founded the Chalice Repose
Project out of Missoula, Montana. Her program was featured last
year on Ted Koppel’s show, Nightline. Schroeder-Sheker began
tending to the dying using music over 25 years ago. Historically
drawing from “Infirmary Music”, which had been an
intimate expression of French monastic medicine in 11th Century
Cluny, this application of music to the dying anticipated the
Holism of the modern hospice and palliative medicine movement
by almost 800 years. Central to cluniac spirituality was the understanding
of the human need for beauty. Shroeder-Sheker defines Music Thanatology
as a palliative medical modality employing very specific prescriptive
harp and singing music to tend to the complex physical and spiritual
needs of the dying. In Music Thanatology, the entire surface of
the skin comes an extension of the ear. This therapy is used at
the death bed vigil and at the very time of death or what is known
as transitus. I ask each of you to compare these beautiful sounds
of the harp and human voice to the consistent clicks, hisses,
beeps and buzzes generated by so-called life support systems in
hospital intensive care units. I might add that this group is
taking steps now to develop an objective science of Music Thanatology.
That over two decades of clinical experience and anecdotal material
while valuable are yielding to more rigorous research, record
keeping and data collection. We need to do this level of rigorous
research in arts medicine and we need your help especially in
specialties like yours.
Other
benefits of the use the arts with the dying, including the important
act of allowing the dying to share or leave behind a creative
and personal gift which provides them with an opportunity to express
gratitude as part of the importance of closure. The evocation
of near and distant memories are so important to the dying from
the standpoint of lifelong autobiographical review, communication
deep and often hidden thoughts and feelings that cannot be expressed
with words through the arts thus providing so called aesthetic
distance and finally and simply, the addition of beauty and even
pleasure in the dying process that the arts can provide.
Personally,
I have always believed that one of the greatest tasks in life
from its very beginning is to prepare for the good death. I figured
out very early on in my own life that preparing for life paradoxically
was an absolute prerequisite to achieving the good and full life.
As Dr. Steven Levin says in his popular book, A Year To Live,
preparing for death is one of the most rational and rewarding
acts of a lifetime.
Thus,
I somewhat tongue and cheek say that our toasts over a good meal
or a happy occasion should reflect a new cultural awareness and
maturity about death - So instead of toasting “to your good
health, “Salut”, “A votre sante”, “L’Chiam”
- maybe we should raise our glasses “to the good death.”
Let
me tell you a brief, personal story. One day, my then seven year
old son, Kenny, visibly shaken and obviously very fearful, began
to cry saying that he could not believe or fathom that some day
he would not be here on this planet earth. I believe this was
literally the moment that he became aware of his own mortality,
which he found very difficult to internalize. I held him in my
arms and let him weep for several moments and then carried him
to a framed poem, which we display to this day in our family room,
that I had written many years ago about musicians. I told him
that a very real part of me, his father, was literally inside
that poem which would live forever and that expression through
the arts was a wonderful way to achieve immortality - a view which
he seemed to accept. Just a few months later he presented to myself
and his mother a poem for which he won a Bucks County wide prize
thus initiating his own lifelong artistic march toward immortality.
Through that experience it became obvious to me that parents need
to have the courage to listen attentively and caringly to their
children’s fears about death and dying and not avoid these
types of discussions because of their own fears and repression
of this issue so frightening yet so central to human existence.
Let
me close with the following poem which I found in the Journal
of the American Medical Association (June 10, 1998):
Leaving The Clinic by Marilyn Taylor (Florida, 1996)
Having carried you own
terrible frailness
to the edge of the water
you bent your body sharply
like a broken stick, until
you were kneeling in the sand.
If the world weren’t so damned
beautiful, you said, maybe
dying wouldn’t be so bad -
But then you saw how a small rain
had pocked the creamy skin
of the beach overnight
causing snails to leave their sanctuaries,
and the pursed hibiscus buds
to fatten and explode,
and with the sea collapsing around us,
thinning to a glassy sheen
that blinded you
you hid your face
behind your hands and shook
with unrequited love.
Finally, I’ll leave you with what I call a behavioral prescription.
Despite all the pain and suffering in the world, there is an abundance
of beauty all around us - God’s gifts if you will. I urge
each of you that in addition to utilizing this beauty through
the arts with your patients put a healthy dose of the arts in
your own life. Thustake thou (Rx) beauty now, often, at the hour
of sleep, in life’s final chapters, at the moment of death
and forever. God bless you for your remarkably creative, compassionate
and extremely important work.
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